We wanted to say a huge thank you to Jay King, Col Booth and Ami-Louise Booth for taking part in the Manchester Half Marathon. Running in 23 degrees heat was far from easy but they didn’t give up. They set out to raise £300 but more than tripled that and have raised a whooping £910! Amazing, thank you so much.
May 6th was a glorious day with the sun shining over us throughout. Sticker 2nd’s played Sticker Legends which was an exciting game. Aiden, who has Cystic Fibrosis and Autism who was celebrating his 18th birthday, had his dream come true and was a football manager for the day. He managed the Sticker 2nd’s team along with current manager Roy Boardman and did a remarkable job. His team listened to what he had to say and they reaped the reward in winning 5 – 1. The celebrations continued into the evening where everyone enjoyed a delicious paella and danced the night away, listening to a fabulous set from John and Andy AKA The Tregony Teachers. A grand total of £1150 was raised whilst everyone had a great time.
We were also presented with a cheque of £300 from Gordon Walker, an artist who draws brilliant caricatures for the news paper each week and gives the proceeds to charity. Thank you Gordon, we are incredibly grateful.
Thank you to Roy Boardman and Gary Warren for organising the teams for the match to go ahead, we couldn’t have done it without you.
Thanks to all the staff at Sticker Football Club for allowing us to use the pitch and the club and for all hard work running the bar all night.
Sunday 6th May 2018 Sticker Football Club will host a celebrity charity football match with all proceeds going to Just Breathe Cornwall. All we need now are supporters and celebs! Please save the date to come and support and if you know any celebs please get in contact with Vicky.
Morgan, aged 14 is a brilliant Goalkeeper and is not going to let Cystic Fibrosis get in the way of his ambition. Morgan is determined to be the first person with Cystic Fibrosis to become a professional footballer. When Morgan went to visit Manchester City training ground a few months ago he heard about a summer school that runs. A week’s residential where you train like a pro amongst Man City’s state of the art facilities. The only downside is that it costs £1200 plus travel. Morgan knew if he wanted to go he’d have to find the money, so came up with the idea of making and selling dog treats! He said, “It seems, everyone in Cornwall has a dog and everyone has a love for Pasties”, so he combined the two- Genius! Morgan is selling them for £2 per bag. Orders went crazy and he’s now sold over 130 bags. For each bag sold Morgan said he would like to donate 50p to Just Breathe Cornwall and has now raised £65 which is an amazing achievement. Even Joe Hart (England Goalie) approves!
If anyone would like to purchase a bag please get in touch. We can arrange some pick up points if need be. As sadly postage cost £2.90 whether one bag is bought or 10 bags are bought. However, if you are outside of Cornwall we can arrange delivery so it would be better to buy multiple bags to save on postage.
Just Breathe would like to invite all parents of children with Cystic Fibrosis in Cornwall to this fabulous event. A time to relax and meet other like minded parents. Relaxation Yoga is for complete novices and no skill is needed. If you can’t make the Yoga but would still like meet for coffee you are still welcome at 10:45am. This is a completely free event and truly hope you are able to join us. Please get in touch and let us know if you can come.
Well, it’s been one year since ‘Just Breathe Cornwall’ was born and I am so proud of what we have achieved so far, however, I am even more excited for what’s to come. We’ve be lucky enough to receive funds from people who have kindly organised quizzes, raffles, cake sales, non-school uniform days, book launches, sponsored haircuts and of course our amazing charity ball. We have also received several donations via our ‘Just Giving’ page. All of which have contributed to us reaching this awesome target. I am truly grateful to everyone who has supported us on our first year and on behalf of all the trustees would like to say a massive thank you. We now have enough funds to register with the charities commissions which is a long process but will in time hopefully enable us to apply to larger companies to source funding. More excitingly we are now able to open applications to our CF families in Cornwall. Please go to our ‘Grants’ page for more details. Here’s to another successful year.
Pactster have teamed up with the CF Trust to help anyone with Cystic Fibrosis and their families stay active from the comfort of their own home, or from your hospital room. This virtual exercise site allows you to team up with your friends/family or allows you to join like minded communities to take part in live classes together or prerecorded classes alone. This is currently free to people with Cystic Fibrosis and their parents/carers thanks to the CF Trust. Just Breathe Cornwall have created a community on the site which you can join to enable us to get to know one another within Cornwall. However, you can stay anonymous if you choose and use the site to suit your own needs. It would be really great, when you’ve had a go, to leave some feedback so we can establish if this is something the CF community feel beneficial. Hope you enjoy!
Simon Reeve gives an update of the Big Life Fix Projects that are making a real difference.
The Cystic Fibrosis Trust have continued to work with this Project along with the UCL Physio team and Great Ormond Street Hospital (GOSH).
You can read their update here;
This amazing project also won a Digital Health Award from the Ability Net, Tech4Good 2017 awards, sponsors by BT .
Kind hearted Rosie Flowers from St Austell, had her hair lopped off to raise funds for our charity and has donated her pony tail to The Little Princess Trust who turn hair into wigs for children suffering hair loss. The hair cut, kindly donated by 3 Wishes Hair Saloon in St Austell, looks fabulous. Rosie set out to raise £100 but her gesture has captured peoples hearts and she’s now raised over £500. There’s still time to show her your support by donating here.
Welcome to the small charity with a big goal! We want to raise £5,000 annually to support local families with Cystic Fibrosis in Cornwall. If you have CF, live with someone who does or want to help those with it breathe easier, then you’ve come to the right place! You can also follow us on Twitter @Just_BreatheCF and Facebook JustBreatheCornwall.