What a wonderful charity we are lucky enough to have access too! It’s been the second time we have had to contact them for various reasons and have been overwhelmed by the help we have managed to get for our Daughter Ria 15 with cystic fibrosis ,when things are already stressful and worrying to know we can ask for help if need be has been a godsend !
So thankful this has been set up and intend to help in any way we can to help raise awareness for this amazing Local Charity.
First grant gifted by local charity
Just Breathe Cornwall
Just Breathe Cornwall has reached its annual fundraising target and made its first award to a family in Redruth.
The local Cornish charity was set up 18 months ago to help families in the county living with Cystic Fibrosis (CF). It set itself an annual fundraising target of £5,000 before inviting applications for awards.
Sufferer, six year-old Sophie Smith was gifted an Eflow nebuliser to help her breathe easier. Nebulisers are part of a daily routine for those with the life-limiting disease, delivering medicine into the lungs.
The NHS provides nebulisers to CF patients but the models take 20 minutes to deliver each dose of medicine, are really noisy and they need to be plugged in.
The charity’s founder, Vicky Coxhead, from Polgooth says: “Anyone who has ever tried to keep a six-year old still for 20 minutes will know the challenge. Now imagine having to do that twice a day every day – it’s a nightmare. Every time they loose interest and don’t fully inhale they are missing a vital dose of medicine. The Eflow is amazing because it takes so little time, is quiet and is portable – the trouble is it is so expensive.”
The Eflow costs £550.00 with an annual running cost of at least £120.00 a year – that puts it out of reach for many CF families.
The charity has been overwhelmed by the kindness and generosity of local businesses and supporters with fundraising having taken many different forms. One teenager lopped off her long blond locks to raise £500; three runners completed the Manchester Half Marathon raising £1,000; one local author kindly donated the proceeds from her book launch and the charity has benefited from some very flexible friends who gifted the proceeds of two charity yoga days.
There are around 70 families in Kernow with CF. The charity’s ambition is to be able to help them all with equipment and activities to support their physiotherapy. Research shows, the best way for those with CF to keep their lungs healthy and avoid long hospital stays, is to do two hours of intensive daily exercise.
Vicky continues: “Sporting activities don’t come cheap and that’s what we want to help CF families access. Whilst we’re thrilled with the progress we’ve made since our launch, we’re looking to ramp up fundraising support to enable us to help even more families.”
Anyone looking to support can reach the charity at http://www.justbreathecornwall.com on Facebook at Just Breathe Cornwall or Twitter Just_BreatheCF