Some of the things that help keep those with CF fit and well aren’t cheap. Subsequently families sometimes struggle to afford them. We know that those with CF have to cough up enough already. That’s why this small charitable group was started in 2017 to provide funds for the 70 or so families in Cornwall living with CF.
Preventative measures are the best medicine. We believe keeping fit and well shouldn’t be out of reach to anyone. So whether it’s equipment or a week’s hospital car parking charges – if you have CF or live with someone who does then we are here to help you.
Here’s our official charity statement:
Just Breathe Cornwall is a small charity constitution. The charity provide grants, goods or services to help give access to preventative every day healthcare solutions that keep those with Cystic Fibrosis fit and well.
The Trustees are Vicky Coxhead (Chair); Brian McHaines (Treasurer); Jenny Green (Secretary); Lewis Saundry (Trustee) and Louise Saundry (Trustee).
Trustees hold at least three meetings each year and have the power to:
- Raise funds, receive grants and donations.
- Apply funds to carry out the work of the charity.
- Co-operate with and support other charities with similar purposes.
- Do anything which is lawful and necessary to achieve the purpose.
The first AGM took place on 20th January 2017 – minutes are available on request.
More about the trustees
Vicky Coxhead, Chair
Vicky Coxhead is mum to four children, Aiden (17), Morgan (14), Finley (13) and Jasmine (10). Aiden has Autism and Learning Disabilities. He and his brother Morgan also have Cystic Fibrosis. Vicky lives in St Austell, Cornwall and is very active helping to make life better and championing for those with Cystic Fibrosis and Autism. As well as being Chair and the driving force behind Just Breathe Cornwall, Vicky is an advocate for quality education for children with Autism. Having been frustrated with her own experiences and fought hard to secure the right learning environment for Aiden, she commenced university this autumn. Her ambition is to secure the qualifications she needs to help mainstream educators better understand autism and create a safe and happy school environment for all children on the Autisic Spectrum .
Brian McHaines, Treasurer
Brian McHaines spent much of his working life running his own successful businesses. He was a sub Postmaster and Area Manager responsible for balancing the books for post offices with multi-million pound annual cash turnovers. Now retired, Brian lives in Luxulyan and volunteers his time. As well as acting as Treasurer for Just Breathe Cornwall.
Jenny Green, Secretary
Jenny has four children, two have Cystic Fibrosis.
Lewis Saundry, Events organiser
Lewis is Dad to two boys Oscar 3 and Archie 5. Oscar was diagnosed with CF via the heel prick test as a newborn. Lewis is passionate about raising more for cystic fibrosis charities, and has taken on the role of events organiser.
Louise is Mum to Oscar and Archie and also manages to fit in clients as a hair dresser. Louise knows first hand the pressures of juggling home life and work whilst looking after a child with Cystic Fibrosis.