In June the CF Trust held a day of protests as part of its ongoing ‘Stop the Clock’ campaign, to ensure those with CF get access to life changing treatments on the NHS.
Around 40% of those with CF could be helped if a new precision medicine called Orkambi were made available to suffers on the NHS. Unfortunately its makers, the NHS and the Government can’t agree an affordable price. The medicine is a breakthrough for many with Cystic Fibrosis because it tackles the underlying cause (genetic defect), rather than just the symptoms. The deadlock continues..