Stop the Clock

Stop the Clock imageIn June the CF Trust held a day of protests as part of its ongoing ‘Stop the Clock’ campaign, to ensure those with CF get access to life changing treatments on the NHS.

Around 40% of those with CF could be helped if a new precision medicine called Orkambi were made available to suffers on the NHS. Unfortunately its makers, the NHS and the Government can’t agree an affordable price. The medicine is a breakthrough for many with Cystic Fibrosis because it tackles the underlying cause (genetic defect), rather than just the symptoms. The deadlock continues..

 

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s